This is an old revision of the document!
Open Health Data: Links
Raw Data
- Open Government Data
- Public Sector Information
- Private Initiativen
- Weltweit:
- USA:
- Positivliste von gedeckten Medikamenten: http://www.fingertipformulary.com/ (How drugs are covered under Medicare Part D)
- Statistische Information über Krankheiten: http://www.cdc.gov/DataStatistics/ (Everything the Center for Disease Control (CDC) wants you to know)
- Records / Stats: https://datamarket.azure.com/dataset/8c30d4d3-0846-4b08-9991-104958f24ca7 (Practice Fusion data: 15,000 records of clinical diagnosis, patient patterns, treatment volumes, and more)
- Records / Stats: https://www.practicefusion.com/research (Practice Fusion data: 15,000 records of clinical diagnosis, patient patterns, treatment volumes, and more)
- http://www.va.gov/bluebutton/ - “Download my Data” Knopf im Kriegsveteranen-Gesundheitssystem
- Schweden
- Schweiz
- Arzneimittelkompendium: kompendium.ch
- Arzneimittelkompendium: ywesee.ch
- Preisvergleiche: comparis.ch, etc.
- Andere
Open Data Projects
- Krankheitsbilder: http://www.patientslikeme.com/
- Genom-Information: https://www.23andme.com/
Standards und Formatfragen
- Diverse Anwendungen und Programme: http://www.cms.gov/home/rsds.asp (Treasure trove of data from the Center for Medicare & Medicaid Services (CMS))
- Hospital Compare database (Beispiel für Quality metrics) http://hospitalcompare.hhs.gov/ (CMS’s Hospital Compare database – quality metrics for thousands of hospitals)
- Tool um Daten zu aggregieren: http://dataferrett.census.gov/ Census and insurance demographics
Communities / Berichterstattung
Journals
Beratungsfirmen unter dem Open Health Schlagwort
Gesetzgebung
- Schweiz
- USA
Cases
- Schweiz
- Canada
- Merck Frosst Canada Ltd. v. Canada (Health), 2012 SCC 3; Entscheid vom 3. Februar 2012: Interessen des Geheimnisberechtigten (Schutzstandard, Beweislast, Informationspflichten): http://scc.lexum.org/en/2012/2012scc3/2012scc3.html
Issue Spotting Exercises (in Aufsätzen und Präsentationen)
Hackathons held
- UC Berkeley, 30 Sept 2011 http://entrepreneurship.berkeley.edu/resources/health_data_hackathon_schedule.html
- Hackinghealth, CA, 24/25 Feb 2012: http://www.hackinghealth.ca/
Cloud Offerings
- motherknows.com (not open data)
Musterpolicies für Access
Anything Else
- Studie “Personalisierte Medizin”: http://www.ta-swiss.ch/?uid=189